First years...
My first years were quite difficult, not for me of course as I don't remember them, but mainly for my parents, brothers and extended family. I have asked them all to write something, so there will be a link to read there stories soon.
Along with my Pierre Robin Syndrome, I was born with dodgy hips - aka hip dysplasia. So I ended up in traction for a while then my hips were put into place and wrapped in a plaster cast for 9 months. Since then I have had problems with my hips but luckily have not needed any operations on them.
I had alot of operations on my trachea and cleft palate. I had a full cleft palate when I was born, which is where the roof of my mouth just wasn't there. So they had to create one for me. Having no palate was the reason that I was fed through an NG tube for a while.
Having 3 older brothers made my life so busy, when I wasn't in hospital I was watching them play football and cricket. Every. Single. Weekend.
This was a good distraction for me at times because I wasn't always thinking about not feeling well and I loved spending time with them and watching them play sport.
Along with my Pierre Robin Syndrome, I was born with dodgy hips - aka hip dysplasia. So I ended up in traction for a while then my hips were put into place and wrapped in a plaster cast for 9 months. Since then I have had problems with my hips but luckily have not needed any operations on them.
I had alot of operations on my trachea and cleft palate. I had a full cleft palate when I was born, which is where the roof of my mouth just wasn't there. So they had to create one for me. Having no palate was the reason that I was fed through an NG tube for a while.
Having 3 older brothers made my life so busy, when I wasn't in hospital I was watching them play football and cricket. Every. Single. Weekend.
This was a good distraction for me at times because I wasn't always thinking about not feeling well and I loved spending time with them and watching them play sport.
Here we are, Phil (top), Neil (left) & Adam (right).
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